Our inspiring patients are the reason Philly Spin-In was created and why we continue to strive to create breakthroughs for every child in our care. All donations to Philly Spin-In power cardiac research and care at Children’s Hospital of Philadelphia (CHOP).
Thank you for helping our heart warriors!
Before Amelia was born she was diagnosed with pulmonary arterial venous fistula, a rare and potentially deadly heart defect. She would need specialized care before, during and immediately after birth. Doctors at CHOP performed a C-section delivery, and within minutes of birth, Amelia underwent a cutting-edge cardiac catheterization procedure to place an expanding metal plug in her heart to correct the blood flow to her heart and lungs. Today, Amelia is a happy and healthy 1-year-old.
Annie was only four days old when she was transported from Arkansas to CHOP for a series of life-saving surgeries to treat hypoplastic left heart syndrome. Doctors told her family that Annie’s condition was dire — she was essentially missing one side of her heart — but that there was hope thanks to the experience and expertise at CHOP. After returning to Philadelphia multiple times for surgery, Annie’s family decided to move to Pennsylvania to ensure she would always have access to world-renown heart care. Today, Annie is a happy kindergartener who loves dance class and hopes to become a “baby doctor” like the ones who saved her life.
Diagnosed with hypoplastic left heart syndrome before he was even born, Beckett underwent three open heart surgeries: when he was 13 hours old, at 5 months old, and at 3 years old. Now 6 years old, Beckett’s ongoing treatment includes daily medication and regular visits to CHOP’s Cardiac Center. His parents will monitor his condition throughout his life and trust that advancements in medicine and technology at CHOP will meet his changing needs as he grows up. Beckett loves to draw, plays the ukulele and is a huge fan of Toy Story.
Cherish, 14, had been struggling with debilitating fatigue for weeks when her family brought her to CHOP. Doctors diagnosed her with severe heart failure caused by dilated cardiomyopathy, a serious condition where the muscle in the heart becomes abnormally thick and enlarged, affecting her body’s ability to pump blood and maintain its rhythm. To help immediately, CHOP doctors implanted a left ventricular assist device (LVAD) to keep her alive until a donor heart was available. Nine months later, Cherish received a heart transplant and began her complete recovery. Today, Cherish is enjoying high school, playing basketball again and looks forward to attending college.
Before Evelyn was even born, doctors knew there was a problem with her heart. Prenatally diagnosed with aortic atresia, Evelyn’s chances for survival were slim. Her parents decided to temporarily move from Colorado to Philadelphia for the advanced delivery care and special cardiac support their baby (and her twin) would receive at CHOP. The twins were born two months early, and Evelyn remained in the cardiac ICU until she was large enough for surgery to successfully repair the severe aortic arch hypoplasia and ventricular septal defect. Evelyn will eventually need her heart conduit — and possibly the valve — replaced but, for today, she is a happy and talkative 3-year-old.
Born with an atrial septal defect, Hudson received life-saving surgery at CHOP when he was nearly a year old to fix the “hole” in the upper chamber of his heart. Now 7, Hudson has recovered completely and only returns to CHOP for an annual check-up. He’s an avid painter, talented ukulele player, and huge fan of superheroes. His parents credit his recovery to the talented team at CHOP’s Cardiac Center.
Soon after he was born in New Mexico, Matt was diagnosed with tetralogy of Fallot, a serious heart defect. He would need complex surgery. His parents reached out to a family member who worked at Children’s Hospital of Philadelphia (CHOP) and discovered the hospital had cardiac experts who could help. Matt and his family came to Philadelphia to meet with CHOP doctors. Soon after, Matt underwent open-heart surgery to patch the abnormal opening between the bottom two chambers of his heart and expand his pulmonary valve. Today, Matt is a thriving 16-year-old who plays lacrosse, races bikes and hopes to become an engineer.
Nico was still growing in his mother’s womb when doctors discovered a massive hole in his heart and multiple defects in his aorta — blocking blood to the rest of his body. Two days after he was born, he was successfully treated at CHOP with open-heart surgery. Today, he’s a thriving little boy who’s hitting his developmental milestones, enjoys roughhousing with his “dada” and playing with his mom and sister. Though only 10 months old, Nico is a huge Philadelphia Eagles football fan and smiles every time he hears the team’s fight song. Nico’s parents are in awe of their “miracle” baby and eternally grateful to the team at CHOP, who have become their second family.
Phoebe has never let her heart condition hold her back. Born with hypoplastic left heart syndrome, Phoebe underwent a series of reconstructive heart surgeries in her first three years. But instead of focusing on her limitations, Phoebe’s family encouraged her to focus on what she could do — bike, hike, play sports, study and live her fullest life. Now 17, Phoebe is looking forward to playing Division 1 lacrosse next fall at Fairfield University in Connecticut. As she enters adulthood, Phoebe says she’s glad she can keep her connection to CHOP through the Single Ventricle Survivorship Program.
At two days old, Samad went into cardiac arrest four times. Though his heart was structurally normal, doctors discovered he had long QT syndrome, a rare genetic heart condition that disrupts the electrical signals in the heart. After Samad was treated with an implantable cardioverter defibrillator to regulate his heart rhythm, his family underwent genetic testing and discovered they too had the condition and were at risk of sudden cardiac arrest. The entire family now receives regular heart monitoring and is treated as needed.
CHOP’s Cardiac Center has been an important part of Sophie’s family since the day she and her twin sister, Phoebe, were born. Both girls were treated as infants for different congenital heart defects. Sophie had surgery first — 24 hours after birth — to repair her ventricular septal heart defect and has been medically followed by CHOP ever since. Sophie is a natural athlete and says she never felt limited by her heart condition – it just made her more determined. After years of playing competitive sports, Sophie was recruited to join the University of Notre Dame’s Division 1 lacrosse team in Fall 2020.