How You Make a Difference

Funds raised through Philly Spin-In are used to propel research and advance care for young patients with heart disease — here at Children’s Hospital of Philadelphia (CHOP) and around the world.

Here a just a few examples of current projects funded by the Philly Spin-in.

Advancing Skill Development through Simulation Training

Simulation training is used to master critical clinical skills in a low-stakes environment. Sherri Kubis, RN, aims to enhance the current Cardiac Center Simulation Program through her project, the Center for Resourced Education and Simulation Training (CREST). By providing a dedicated simulation space and local experts to facilitate instruction, CREST plans to integrate simulation training into both new staff orientation and ongoing professional education.

Telehealth Technology: Increasing Access to Cardiac Care

Cardiac concerns often lead to the Emergency Department (ED). Some issues, however, aren’t emergencies and can be addressed remotely. While telehealth technology has become increasingly popular, phone visits don’t provide the same level of triage as an in-person exam. The CHOP Telecardiology Program, led by Tamar Preminger, MD, will investigate the use of video cardiology exams via TytoCare™ technology. This telehealth tool not only supports visual health exams, but enables a provider to listen to a remote patient’s heart and lungs, take their temperature and view their throat and ear canals. The project team postulates that video cardiology exams will reduce unnecessary ED visits and expediate admission for patients that need immediate care.

Enhancing the Patient/Family Experience

The Virtual iPad Presence in Rounds (VIPPIR) Project is spearheaded by Maryam Y. Naim, MD, and a multidisciplinary team interested in utilizing FaceTime or Skype to increase caregiver presence in daily rounds in the Evelyn and Daniel M. Tabas Cardiac Intensive Care Unit (CICU). The team’s findings indicate that the ability to be present in rounds reduces caregivers’ stress. By providing families with an iPad and utilizing a mobile stand in patient rooms, the project plans to use telemedicine technology to increase caregiver presence in rounds when they are unable to be on the unit, thus improving family/care team communication.

Creating Community for Cardiac Families

For families of children with congenital heart defects, it is common to experience many challenging emotions, including feelings of overwhelm and isolation. Cardiac Connections, a comprehensive social support program proposed by Abby Demianczky, PhD, and team, aims to alleviate some of this emotional stress by facilitating connections between Cardiac Center families. The program includes educational seminars, organized peer-to-peer support and planned family events, with the ultimate goal of empowering Cardiac Center families and promoting community engagement.